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  • Second Precipitating in Health Advocacy


    The second precipitating event was a meeting at the Genetic Alliance conference in Washington DC in July 2005. The second rainfall event was a meeting ground on the Genetic Alliance  conference in Washington DC in July 2005. Numerous members of the Genetic Alliance had requested a society or association of disease-specific advocates, offering disease-specific advocates a professional trade association, health insurance benefits and credentialing. Many members of the Genetic Alliance had requested an association or organization of disease-specific lawyers, offering disease-specific advocates for a professional association of sickness benefits and legitimacy. The idea was subsequently abandoned by this group after a number of meetings by phone indicated that there was too much diversity in lawyer’s understanding of what such an organization should entail. The idea was later rejected by this group after a series of meetings over the phone indicated that there was too much diversity in understanding what to call such a leading organization. In addition, the advocates decided that there was too much difference between disease-specific advocates and ‘health’ advocates. Moreover, the lawyers decided there was too much difference between the disease-specific and lawyers ‘health advocates’.

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